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The work of PAMIS:  Promoting a More Inclusive Society

PAMIS Logoadded 26/06/2013

 

 

What does the Fife Family Support Service Coordinator of PAMIS do?  

Well, I am not sure where to begin! The PAMIS Family Support Service is for children and adults with profound learningswimming disabilities and their families. In practice, this covers a huge variety of things! Perhaps the easiest way to let you know about the work of PAMIS in Fife is to give you a glimpse into my diary:

It’s a Monday  - met with Janice from RNIB and we mapped out dates for our inclusive swimming sessions in Dunfermline for people with profound and multiple learning disabilities (PMLD) / complex needs. For more information contact maureen.pamis@fifecarers.co.uk

The rest of the morning was spent responding to emails and phone calls. Many were about the PAMIS/SENSE Scotland Fun Day, 13 July at Lochore Meadows.  Should be great day, we have adapted bikes/ boats, a druSailingmming workshop, face painting and much more... see www.pamis.org.uk
                            
Monday afternoon – met with the Fife Home Based Moving and Handling Project steering group (NHS, Fife council, Fife Carers Centre & PAMIS). This project is for unpaid carers, it offers free information and training in the safest ways to move & handle the person you care for. If you want to know more, email: maureen.pamis@fifecarers.co.uk.

It’s a Tuesday … I sometimes feel I cannot keep up when it comes to technology so I attended the CALL Assistive Technology event in Glasgow. I learnt lots about the new version of “Boardmaker” and there is some amazing software on “eye control mouse movement” for people with disabilities. Well worth the visit. www.callscotland.org.uk

It’s a Wednesday…. I met with a family who care for their two children, one of whom has PMLD .  This family are dealing with many issues at once, the impact of the “under occupancy tax”, a school transition, return to work issues, equipment issues, respite provision and more... PAMIS can give practical support with such issues and sometimes it helps to have someone to talk to.Moving and Handling workshop

Thursday & Friday….. Attended meetings and training on Self-Directed Support (SDS). Care packages in the future will look different. For example, some PAMIS families are contemplating employing Personal Assistants (PAs); some already have PAs; many families are well versed in the art of managing a “direct payment”;  whilst others are content to retain their current day service provision. The SDS Bill is designed to give families/carers/ the cared for person, more choice and control but change can be scary and the “new landscape” of “outcome focused” care planning can be daunting. Part of my role is to advice and support families with SDS. For more information on SDS go to: www.sdsscotland.org.uk

It’s the following Tuesday… I attended “The keys to life” launch at Murrayfield in Edinburgh with a Fife Family who care for their teenage son with PMLD. “The keys to life” is the new learning disability strategy for Scotland. This is an important document. To check it out go to: www.scotland.gov.uk
Later that day… I spoke to Robert Ferguson (Fife Council Access Officer) about Changing Places. In PAMIS it is a standing joke that we spend a great deal of our time talking about toilets! Bathroom

Changing Places Logo

PAMIS campaigns tirelessly to ensure that families are not reduced to changing their daughters or sons on toilet floors. The lack of suitable changing facilities in toilets for people with disabilities is one of the most restrictive practical problems facing our families. Fife is leading the way in Changing Places, to view the Scottish Directory of Changing Places toilets see the PAMIS website or contact me for a hard copy.

It’s later in the week …I have a meeting with a new family who care for their daughter with PMLD. Making a referral to PAMIS is easy. If you think PAMIS could be of help to you contact me on 01592551310 or email maureen.pamis@fifecarers.co.uk

Life at PAMIS is never dull. Oh, I must remember to organise the wheelchair ice skating sessions! My aim is to work in partnership with people with profound and multiple learning disabilities and their carers/professionals for: “A Better Life” for people with disabilities. 


.PAMIS 20th Anniversary Brochure Front page cover.

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Disabilities Fife,
West Bridge Mill, Bridge Street,
Kirkcaldy, Fife, KY1 1TE
Scottish Charity No: SC 026112